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Toni Saunders

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A Letter to the World Health Organization
Asking the World Health Organization to add Trigeminal Neuralgia on their "Health Topic List", 2/06/2014 - People simply must pay attention to the suffering and life-disrupting plight of people who suffer from Trigeminal Neuralgia (TN), also known as Tic Douloureux or “the Suicide Disease.” Lack of funding and awareness means there is little accurate data on exactly how many global citizens are currently facing the destructive plight of this illness. Information from the Facial Pain Research Foundation suggests it is approximately 4 to 8 million sufferers worldwide (1 in every 20 thousand individuals). While the last epidemiological study on the prevalence of this disease is more than 25 years old, leading medical experts believe that it currently afflicts .01% of the world’s population. Misdiagnoses and failed medicinal and surgical treatments are prevalent. Given the severity of this pain and the estimated number of patients worldwide, including children, it seems to defy belief that so little is being done to help the afflicted. Once again we're "Lighting Up Teal" this October 7 2014 for awareness.

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